The Concept of Time: Reflections after this Month’s JDRF #t1d Support Group

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What happens in Vegas, stays in Vegas.

Ah that old mantra meant for bachelor/bachelorette parties that leave little, if any, scandalous photo evidence.

That motto serves as the unspoken pact between the group. Everyone knows that anything that happens during Vegas time is off limits.

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Same goes in our JDRF #t1d adult support group. Logic would tell you it’s hard to trust a bunch of people who for some, are often strangers, but there’s something about these people that make me feel safe.

There are times where I ask myself, “Why am I here? It’s out of the way and really, I think I’m managing okay.” Sometimes I even proclaim, “Nah, I don’t need to come back”. But EVERY. SINGLE. TIME…I end up returning.

 

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The benefits can’t be explained well, because I can’t even describe the feeling I get. It’s just comfy. And nice. And I can say whatever without explaining. And I can be totally distant and quiet, loud and angry and it doesn’t matter. There’s really no judgement.

I’m sad to hear that these types of group don’t exist everywhere. How can we change that? What is the best way to make sure that everyone is able to be part of something like this?

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Becoming a JDRF Adult Support Group Regular

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I’m committed to going on the regular. 2016 is the year of consistency, and for me, that means attending the JDRF adult support group every month. I went in December and tonight and I can say for me the pros definitely outweigh the cons.

Perspective: Although I still feel new and often lost at times within the bunch (in person and online)-I get to meet others who are at all different stages: the veterans, the newly diagnosed, it’s really a mixed bag and it offers a lot of different perspectives.

The greatest advantage is walking away after a few hours and knowing I was in a room with a bunch of people who just get it. I can’t really put a price on that or even describe the magnitude of that pro but let’s just say it’s pretty big for me. Let me stuff my face with cookie crumbs hanging from my lip. Taking 5 pee breaks during the session. No explanation needed.

Mentally, it gives me a power up. Like in Mario!

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And now that I’ve been to the meetings enough times, my name card is set out on the table and I know a lot of faces who come to the table. I’m not as nervous as before and I can tell physically that my body is more relaxed. I’m not worrying about how I look or if I’m slouching. I’m just Jess.

That type of familiarity is especially important to me since there has been so much change in my life the last while.

We all want to feel we belong. We all want to be acknowledged. And this group does just that for me.

Next week I have a date with two type 1 friends and when I take inventory, a lot of my close friends now are people living with type 1. That, including some of the interaction I have with people on social media, I have to say there’s a community in-person and online that adds up to something I can’t take for granted in 2016.

This will be a big year for me in so many ways, and with a good team, new endocrinologist and hospital (which I have yet to meet, fingers crossed), place, and fresh new business adventures, it will be one big ride.

Has a support group helped you? Who is part of your diabetes community?

Sending lots of support to you need it, and even if you feel you don’t.

I will do everything -right- and my blood sugars will still do whatever it wants. I will have huge victories and sometimes feel defeated. no matter what though, every day i'm going to set out to try. i will think about how i want my life to

XO,

Jess

 

 

Let the month of diabetes awareness begin!

If ever there is a time to get out there and connect with fellow t1d’s, it’s this month. There are loads of events happening in Toronto (and across Canada of course) and I wanted to share with you some of them so you can book those days off and meet up with your friends who just ‘get it’.

The earliest event is coming up on Wednesday:

I’ve interviewed both Michelle and Sebastian and trust that this talk will leave you feeling so much better about your diabetes management.

Call Calgary home? Why not mix and mingle with Connected in Motion?

Their next event is on Nov. 4th. Click here for more details! 

Sports your thang? Check out this event. Toronto Argos dress in blue too. #twinsies

And on World Diabetes Day, Nov. 14th, the annual Type 1 Update hosted by Animas will take place once again!

I go to this event every year (I went in the spring) and I think this may be the first one I miss which makes me really sad. I’ll be sure to cover the event in whatever way I can though. This 1/2 day has always lifted my spirits and made me feel more confident. I hope you can attend this one! Don’t forget to RSVP to Robin.
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There’s so many more events but here are the highlights. Feel free to comment and share any other events that you know of this going on this month.

And one more thing! What’s an awareness month without some profile pic changes? Check out this awesome campaign #T1DLooksLikeMe and get yours here.

XO

Jess

JDRF Ride for Diabetes Research: How Far Would You Go?

These fundraising events are a great excuse to get off early, push back the paperwork and all the while make your company look good. After all, fundraisers are fundraisers right?

Well no. Actually that’s complete bull. Maybe you don’t know much about type 1 diabetes or maybe you do. If you chose to participate in this year’s JDRF Ride for Diabetes Research in Canada I’m going to have to tell you that what you did in one afternoon created great potential.

It gives people like me hope. I see people who often don’t have any affiliation with the cause, listen with the ears open and understand and hear first hand what it’s like to live with this disease day in and out. You sweated and pedalled with hundreds of others. And in that process of moving each pedal forward, it has brought hope to so many like me.

After so many years, my doctor confirmed to me recently that I do, indeed have Type 1 diabetes (not any other kind, there are many!). And when I saw all the action that took place at the Metro Convention Centre, I got damn emotional.

It just goes to show that people have good in them. They want to help. Physical activity breeds power and positivity. Thank you to all who participated.

Recently I have been feeling so defeated. So tired. So mentally at the end of my rope. Being able to witness events like these gives me that push to keep going. To not give up. To remember that there are people out there who are willing to give their time (their most precious commodity) to help people they don’t even know.

It means so much to me that you rode your heart out.

XO,
J

Free Celiac disease testing in Ontario for people with type 1 diabetes

 

 

 

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Live in Ontario? Live with type 1 diabetes? There’s FREE Celiac disease testing right now. 

A list of participating locations below.

TORONTO and GTA:
The Hospital for Sick Children
Mount Sinai Hospital
Charles H. Best Diabetes Centre
Credit Valley Hospital, Trillium Health Network
Mississauga Hospital, Trillium Health Network
St. Michael’s Hospital
Markham Stouffville Hospital
Mount Sinai Hospital
Women’s College Hospital
Sunnybrook Hospital
The Scarborough Hospital
North York General Hospital

LONDON, ON:
Children’s Hospital, London Health Sciences Centre
St. Joseph’s Health Care London

KINGSTON, ON:
Kingston General Hospital

OTTAWA:
The Ottawa Hospital

WINDSOR, ON:
Windsor Regional Hospital

HAMILTON, ON:
McMaster University Health Sciences Centre

Call (416) 813-7654 ext. 201713 or email cd.diet@sickkids.ca to find out the closest testing facility.

They also started up a Facebook page. Check it out here.

Official website here.

XO,

Jess