The things I never thought. My Nike 15k recap, running with type 1 diabetes + other autoimmune fun

 

 

Source Nike Women Toronto Facebook Page

Source Nike Women Toronto Facebook Page

The Nike Toronto 15k took place a few weeks ago and I need to share with you some surprises that happened along the way. This was a great experience from my own personal health perspective in dealing with multiple autoimmune disease fun.

1. At the water stations, they provided Nuun. I have never used this before at a race but realized quickly that I needed it. According to the packet, each Nuun tablet has 13 grams of carbs, but was each tablet used per drink? I have no idea.

Lesson: Check to see what is offered at the race stations and try it out beforehand. My stomach doesn’t welcome everything with open arms so I lucked out that taking it in went smoothly.

Also, check if they water the carb drinks down (common practice). That can also mess up your calculations while you are pounding the pavement. Be assertive. Sometimes companies don’t like to admit how much they water down drinks but usually when you say your medical well being heavily depends on knowing this information (and it does), you can usually get a truthful answer.

2. Since I was on an island (Centre Island), it meant cooler temps with the water surrounding me. Add some nasty rain and chilly wind and it equalled out to be quite the bg dip before the race started. I downed a ton of carbs but nothing seemed to bring my levels up so I started a lot lower than I would have liked.

Lesson: Think of ALL weather factors and basically be a came and pack all your food, super extra food, if possible.

3. Take lows in stride. It’s easy to get frustrated quickly when you look down and see your CGM says….

Lesson: Enjoy the experience and think of it this way: You are running a race. Some people would never get the chance to do this, yet here you are, feeling the buzz of thousands around you getting active and building a sense of community. STOP AND TAKE IT IN.

Nike Women Toronto Facebook Page

Running where the planes take off! How cool is that!? Source: Nike Women Toronto Facebook Page

4. Okay, if I can help it, I rather pee in the bush than wait in line for the few port-a-potty’s that are out there on the course. I did not look as carefully as I had thought and when I crouched down a thorny needle-like plant went right into my inner thigh. Once I was done I quickly pulled up my pants and kept running but it hurt. A lot. Eventually it either fell out or I became numb to the pain. Either way…

Lesson: Pee carefully.

Nike Women Toronto Facebook Page

Nike Women Toronto Facebook Page

Overall, the race went well. I had to take some of my other neuro medication the night before (which makes me feel super lazy and feeling ‘hungover’ the next day) so I was thrilled with my efforts. And once I got into the groove… I took the time to stop and smell the roses.

XO,

Jess

 

Animas Canada has kindly chosen to support me with the Dexcom CGM as I continue to train for triathlons, cycling and running events. I believe in full transparency and appreciate that Animas Canada does not review or approve my blog posts. Please read the full disclosure here

Training this season with Lumiere, my continuous glucose monitor

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WHYYYYYYYYYYY!?!?!?

My mind screams it in anger. On good days, I yell it half-laughing.

It is the question I ask myself when I ate enough carbs to feed a small army before my workout and yet, here I go, tanking into low blood sugar abyss.

falling

This happens for mostly cycling and running these days. It seems like sometimes no matter what I consume, my body sticks its tongue out at me and says “Oh yeah? Watch this”.

I have purposely set my low alarm alert a bit higher so that I can be notified even earlier to try and adjust and avoid the lows.

Bonus? Drinking Coke. Mmmm I love regular Coke.

Minus? Frustration. The quick reaction to blame myself. I need to catch these sooner and just trust that hey, I’m doing what I can, and that’s all I can ask of myself.

These lows have changed how I train in that I carry more fuel (I am a human camel).

This season I realized how much I miss running with nothing. Just carrying absolutely nothing. No snacks, no belt, fanny pack, hydration pack. NOTHING.

To combat this, I found a loop near my house where I can set supplies down in a safe area and run free! The loops don’t bother me as I zone out when I run so this works for me. As for Lumiere, I do put him inside my running arm band (which I’m fine with). I feel seeing the same thing over and over is worth it to run without carrying as much and feeling that lightness.

I know they have golf carts that follow people around. Wonder if I can get some kind of contraption that does the same? I could carry my water, glucose tabs, bars, tester, CGM, insulin.

Am I dreaming? Maybe. But it’s fun to think about it.

XO,

J

Animas Canada has kindly chosen to support me with the Dexcom CGM as I continue to train for triathlons, cycling and running events. I believe in full transparency and appreciate that Animas Canada does not review or approve my blog posts. Please read the full disclosure here

Letting go of friendships after diabetes diagnosis. Q&A with Psychological Associate Michelle Sorensen

Q&A Michelle Sorensen

How do I mentally let go of some of the friendships that did not survive my diagnoses?  Still mourning, nothing left to say or do….

First of all, when someone is grieving they always have the right to distance themselves from those who cannot support them in the way they need to be supported. 

Sometimes it is not MORE support that is needed, but a DIFFERENT kind of support.  You can be surrounded by people but feel totally unsupported.

If being around someone who cannot support you in the way you need to be supported (with empathy and compassion) is upsetting, create distance when it is possible.  If you feel a little guilty doing so, don’t worry.  It is far better for you and for others if you choose a little guilt over a pile of resentment.

When angry, we do not want to turn against others (aggression) or turn inwards (bottling it all up). Asserting yourself may mean disclosing that you are hurt, disappointed or confused about their reaction. However, do not create expectations that this will change their behaviour. If you assert yourself, do it for you.  Even if the friend cannot respond with anything positive, feel proud of yourself that you were brave enough to be vulnerable and open up.  And then move forward and focus on building other relationships.

Doucette014

As someone who is a long ways out of young adulthood and firmly entering middle age (!) I would advise to be careful about writing anyone important off completely.  The twenties and even thirties are full of major life changes and growth.  People are not the same (hopefully) at 40 as they are at 20.  I have friends who were amazing when I was diagnosed.  I still remember my friend Deb coming to get me from the hospital and to pick up my mom from the airport.  I remember my friends Diana and Jenn telling me that when they heard I was admitted to hospital and diagnosed, they cried on the phone together. 

I still tear up when I remember the relief of knowing some of my friends understood the severity of my situation.  However, I had friends caught up in their own lives who made insensitive comments, minimized diabetes, or hurt me in some way.  Some of them have had tough life experiences of their own since then or simply matured and now are so supportive.  I am really glad I kept them in my life, but just adjusted expectations or took breaks as needed.

I also know looking back, that being in my twenties made it hard to incorporate chronic disease into my identity because I was still figuring myself out!  When my husband came into my life, he challenged me to be less of a people pleaser and to look out for myself more.  His support and insight really helped me to realize that my expectations of others were largely a reflection of how much I expected out of myself.  Now that I am more compassionate towards myself, the behaviour of others impacts me less.  I always encourage my type 1 patients to “create more space in their lives for diabetes”…. being less stressed and less rushed, juggling fewer balls…  this all helps us to have more patience for diabetes and for other people.  It may be extra important for people with diabetes, but it is actually true for everyone.

Diabetes has given me so many life lessons.  I sometimes joke that I would be quite happy if I was cured now and could hang on to the life lessons and give the diabetes back!  As much as trying to manage the diabetes drives me crazy at times, I seriously doubt I would be a happier person if I had never been diagnosed.  Having a perfect HgA1C does not make people happy if they never worried about it in the first place!  So I will take my imperfect pancreas and make the best of it.

Thank You Michelle Sorensen

This is the third and final installment of my Q&A series with Michelle. Thank you for all of your time Michelle. You have taught me so much and hopefully others reading.

If you missed the first two, here they are!

Mentally overcoming the diabetes stigma. Q&A with Psychological associate Michelle Sorensen

What are the challenges specific to adults diagnoses? Psychological associate Michelle Sorensen answers.

XO,

J