My first infusion site! Pump & CGM Shopping continues…

A constant game of catchup.

As an adult diagnosed with type 1 diabetes at 29, I feel like I’m behind.

The majority of people I know with t1d have been living with it since they were children or teens. Pros.

Is it second nature to them? Do they remember life before this?

I’m still utterly confused and overwhelmed.

Example: Before I go to a d-related event, I often hop online and go through the same routine.

…the list goes on. You’d think by now I’d have it down pat. The fact of the matter is my brain has been super fried since diagnosis. Information doesn’t stick well and I get a deer-in-the-headlights look and feeling.

My new t1d friends have shown me nothing short of complete understanding, yet I still have a need to sound like I know what they’re talking about (or at the very least, sound a little less like an idiot).

Is this what it’s like to be diagnosed so late in life? As an independent, fully self-sufficient person maybe there’s this pressure  inside myself to “know it all” since I have the resources and mind to.

I don’t though. Not even close.

Meet the pumps & cgm’s

Choosing to pump is a big decision, as is what pump you’ll use. To make the process less daunting, I’m slowly trying to familiarize myself with the technology.

I got around to meeting with Omnipod and Animas last year to get a feel for their products. See my blog post on that here.

This time around, I contacted all four, adding Accu-Chek and Metronic to the list.

Sheldon Smith from Metronic came over to my house yesterday and I tried on my VERY FIRST infusion set.

On me right now is the Metronic Silhouette infusion set (I did manual insertion) as well as the Quick Set on the other side of my abdomen. Both were far less painful than I had imagined.

Luckily I had ballet class last night, the perfect place to start testing out these bad boys. All that bending, twisting and jumping. Here’s my Instagram post.

 

I’m going to beat up all these demos and give them a taste of my active lifestyle.

Trying to appreciating the process,

Jess

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9 Comments

  1. Thanks for this post! I was diagnosed almost 8 months ago at age 21 and it is definitely hard reconciling feeling like an adult / being independent with asking for help / feeling like I have no idea what I’m doing. Other Type 1s are absolutely supportive but I definitely know the deer-in-the-headlights feeling! Keep posting, your blog is really helpful and inspiring 🙂

    Reply

    1. Hi Elisabeth, thank you for being so sweet! I’m glad you find my home on the web a positive place 🙂 You are not alone. I’m glad that you were able to connect with what I wrote. It’s a different world being diagnosed later in life and I’m definitely going to continue to write about it. If there are any ever topics you want me to look into, don’t hesitate to ask. If we’re going down this road, I’m glad we are going together. Stay strong and beautiful!

      Reply

  2. I was diagnosed at 28 so I completely understand that feeling of ‘catch up’ you’re talking about. It’s a pretty steep learning curve. It looks like you’re doing a great job of figuring it out, researching what works best for you and learning from other members of the T1 tribe.

    Keep us posted on what you decide and don’t hesitate to ask any question. We might not have the answers but we’re all in it together.

    Reply

  3. Thank you Celine! I will definitely ask lots of questions. Sometimes I feel like I’m in one of those movie scenes where I’m hanging on the edge of a cliff and if I don’t learn fast enough, my hand slips and I just fall and crash.

    My t1d tribe is moving more to in-person friendships and that has been the greatest gift. I’m very very fortunate to have met a very active type 1’s who likes triathlon as well. I meant what I said before, I really hope one day (when it’s not an ice box out there) we can spend a day riding or training. That would be wonderful!

    Reply

    1. It would indeed be wonderful and I would be happy to do that. I agree though, let’s wait until it gets just a wee bit warmer out. It’s still too cold to cycle and way way too cold to swim.

      Reply

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